About the wdsa

The Wellington Down Syndrome Association supports, educates and advocates for people within the Down syndrome community in the greater Wellington Region.

We seek to empower and encourage individuals with Down syndrome for a lifetime of meaningful inclusion in the community.

What is the WDSA?

The Wellington Down Syndrome Association is a non-profit organisation that supports families and people with Down syndrome in the greater Wellington Region.

What do we do?

We support parents (particularly new parents) with community contact, welcome packs and linking to other helpful information and resources.

The WDSA run some fantastic events like the Frances Clarke community awards and the annual WDSA Christmas party. You can often find us running local age group catch ups to provide opportunities for people within the Down syndrome community to connect and build relationships.

We help to provide educational resources and support to parents and schools where appropriate.

We’re always advocating for the fantastic people in our community that have Down syndrome by sharing stories, events and other information.

Our Principles

We’re passionate and positive about people that have Down syndrome. People with Down syndrome are valuable members of the Wellington community.

We are connected and seek to build relationships and share resources with other organisations

The WDSA have a Memorandum of Understanding with the New Zealand Down Syndrome Association and seek to work together for the Down syndrome community within New Zealand.

WDSA membership will always be free. Join Today

We are a registered Charity: Charity Number CC52040

Meet the team

The WDSA committee is run entirely by volunteers

James Webber


James replies to lots of emails. He’s always organising, planning things and looking after tech. He is passionate about supporting education for people with Down syndrome.

His youngest daughter Emily is 8.

When not jumping on the trampoline or dancing to Go Noodle, James likes to drink coffee… lots of coffee!

Julie Hopkins


Julie writes up all our minutes and generally keeps us inline.

She has a daughter called Nyah.

Amanda Morton

Treasurer/Frances Clarke Coordinator 

Amanda makes sure we have money in the bank to pay for things.

She has a son called Eli


Deborah Wellington Down Syndrome

Deborah Jones

Events/Hospital Liaison

Deborah organsies many of our awesome events and also visits new parents in Wellington Hosptial.

Her eldest daughter is Heidi.

Ruth Coard

Fundraising/Hospital Liaison

Ruth is our fundraising Ninja and all round awesome doer. She also visits parents in Lower Hutt Hospital.

Ruths new son is Liam.

Sarah Papageorgiou


Sarah helps to put on some awesome events, fundraisers and promotes WDSA.

Flora is her middle child, she is 3 years old.

As a family she likes to spend as much time as possible outdoors. Often this means jumping on the trampoline and going on adventures to find new playgrounds… and will always include picnics and ice cream.

Andrew Bulled


Andrew manages our email drops and also writes stories for us.

His son Cooper just turned 2.

Blair Griffiths


Blair helps us with Fundraising and grants.

He has a daughter called Sofia.

Kim Porthouse

NZDSA President 

Kim is the president of the National Down Syndrome Association and tries her best to help out regionally when she can.

Brendon is her son who will be leaving school soon.

Everyone is Welcome

WDSA membership is free and available to all. Parents of children with Down syndrome, grandparents, aunts and uncles, adult siblings, care-givers and other interested organisations. You don’t need to be in the Wellington region to become a member.



We are a small organisation with limited resources run completely by volunteers and good will. Help us by playing a critical role in supporting people with Down syndrome in the greater Wellington region.

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